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Quality Carers Ltd, Suite 163, 88 Lower Marsh, Waterloo, London   SE1 7AB

Tel 020 7633 0796     e-mail: qualitycarers@hotmail.com

 

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FEDERATION OF SMALL BUSINESSES

 

 

 

The Personal Views of One Person

with a Disability

  

IF I HAD A LIVE –IN CARER............

 We would both need to recognise the thin line between a job and friendship. This would be important, especially as the service is one-to-one and in my own home.

 The carer would have to be aware that I am not elderly, mentally impaired, or unable to make decisions.

 Although I am physically capable of many tasks, I am in constant background pain, even my able side is often painful and I do not have normal grip or sensation. Therefore even basic jobs and movement are tiring, take time and make me exhausted. This is often worst first thing in the morning when my muscles are stiff and last thing at night when I really need to stretch out. So just because I can do quite a lot of things I won’t always feel like it. I would need the carer to accept this and not try and make me prepare a meal today just because I did it yesterday. I am not in some sort of competition, and I don’t need to prove myself. I also don’t need to be praised for achieving everyday tasks.

 It is my home and very personal to me. I would not want a carer re-arranging things and I would need my privacy so some areas would be “off limits” except by invitation.

 I would like the carer to discuss and prepare a flexible weekly timetable with me. I’d like to go out for a “walk”, to browse, go to the library, have meals etc. quite aimlessly; so often disabled people have to “justify” an outing by giving it a purpose.

 I’d like to know something about the carer, family, background etc. not in great detail but just enough to make the person more “rounded”

 Remember always that I am not a relative. We are in a business together. I am a normal person whose body is out of my control. It makes me angry sometimes and I react to that anger, but I am also able to accept my disability and live a positive independent life.

BEING DISABLED

 At first the disablement was severe and I needed assistance with bathing, toileting, dressing, eating and turning in bed. I spent my days in a wheelchair, watching TV and I was very depressed. I increasingly found it difficult to remember who I used to be and responded to images that people placed upon me i.e. a placid, sweet-natured disabled person.

 However, with regular Occupational Therapy and Physiotherapy sessions I slowly gained control over my body – muscles became stronger, nerve endings calmed down, my balance returned and six months after retuning home I was able to independently shower, dress, prepare and eat food, use the washing machine and get in and out of bed. My family and friends also played a major part by responding to my improvement in positive ways. With my hard-won independence my depression lifted, I turned off the TV, started to read again and to remind myself of me and who I was. I began to accept my disability and to make plans for the future.

 Today I have a weekly session of one hour personal physio at home. My partner works full-time and twice yearly goes off on holiday for approximately 5-7 days. I stay on my own with telephone contact with my daughter, next door neighbours and friends. I am starting Open University in February.

 

Quality Carers Ltd, Suite 163, 88 Lower Marsh, Waterloo, London   SE1 7AB

Tel 020 7633 0796

e-mail: qualitycarers@hotmail.com

Registered in England Number 2733348   ~   Registered Office as above   ~   VAT Registration Number 653 3732 37

copyright © 2016 Quality Carers all rights reserved

Full time live in care, Full time home care, 24 hour care, 24 hour home care, 24 hour live in care, Elderly care, infirm care, post operative care, disabled care, old people care, in Areas Covered: London, Home Counties, Middlesex, Midlands, Surrey, Berkshire, Berks, Buckinghamshire, Bucks, Kent, Essex, Warwickshire, West Midlands, Hertfordshire, Herts, Northamptonshire, Northants, Leicestershire,